Knowing as much as you can about ulcerative colitis can help you manage the challenges and learn to live well. The following resources can help you with information, support and advice from people just like you.
There is a lot more information available about UC, including brochure, tips, applications and downloadable resources.
Badgut.org is the Website of the Gastrointestinal Society, a Canadian charity committed to increasing awareness, providing education and funding research regarding gastrointestinal diseases and disorders. Programs and services include patient information pamphlets, lectures and community outreach programs.
Telephone: 416-920-5035, 1-800-387-1479
Founded in 1974, the CCC has grown to become a world leader in IBD research funding. The CCC is also committed to education and to raising public awareness about Crohn’s disease and UC.
CCC provides brochures, holds education events and information sessions on IBD, offering useful health tips, inspirational profiles and Q&As
For articles on disease management and inspiring stories, subscribe to the CCC’s electronic newsletter “Talk about GUTS!” available at www.crohnsandcolitis.ca.
For events and information about UC in your region, go to: http://www.crohnsandcolitis.ca/News-Events/Events
The CDHF provides expert advice and compassionate support to Canadians suffering from digestive disorders. Directly connected to Canada’s leading digestive health experts, physicians and scientists, the CDHF provides practical, science-based and up-to-date information about digestive health and disease.
Gut Inspired is a group of Canadians living with Crohn’s disease and UC who have joined forces to increase the awareness of IBD in Canada. Gut Inspired was developed by patients for patients to promote acceptance and voice the presence of IBD in Canada.
The Crohn’s and Colitis Foundation of America (CCFA) is a non-profit, volunteer-driven organization dedicated to finding the cures for Crohn’s disease and UC. The CCFA’s mission is to cure Crohn’s disease and UC, and to improve the quality of life of children and adults affected by these diseases. The CCFA funds cutting-edge research, provides educational workshops and programs, and publishes the scientific journal Inflammatory Bowel Diseases to enable health professionals to keep abreast of this rapidly growing field.
The GoHere Washroom Access Initiative is a program that increases washroom access for people living with ulcerative colitis, and/or other medical conditions related to incontinence. Crohn’s and Colitis Canada has launched this program that encourages businesses across Canada to open their washrooms and play an important role in building accessible communities and improving lives. To learn more about this initiative, please visit the Crohn’s and Colitis Canada website at: http://www.go-here.ca
Email: reachoutforyouth @reachoutforyouth.org
Reach Out for Youth with Ileitis and Colitis, Inc. is a non-profit support organization dedicated to assisting families whose children have IBD. The group’s goals include providing educational materials and emotional support to affected individuals and their families, and organizing fundraising efforts to promote research into the causes and treatment of IBD. A hotline offers interested individuals the opportunity to communicate on a one-to-one basis, especially when acute symptoms are present.
The United Ostomy Association of Canada Inc. is a volunteer-based organization dedicated to assisting all persons facing life with gastrointestinal or urinary diversions by providing emotional support, experienced and practical help, instructional and informational services through its membership, to the family unit, associated caregivers and the general public.
There are many books available on living with UC. These include diet guides, cookbooks and coping strategies.
Coping Successfully with Ulcerative Colitis
Peter Cartwright. Sheldon Press. September 2004.
This book was written for people with UC, as well as their friends and family members. It provides clear and readable information about UC that explains how to reduce its effects on daily life and describes the potential of new treatments.
Crohn’s and Colitis Diet Guide
Dr. A. Hillary Steinhart & Julie Cepo. Mount Sinai Hospital.
Diet is a huge priority for anyone living with Crohn’s disease or UC. This book provides guidelines regarding specific foods that might cause problems, as well as delicious and nutritious recipes.
Crohn’s and Colitis: Understanding and Managing IBD
Dr. A. Hillary Steinhart. Mount Sinai Hospital.
This new edition features new content based on the most current evidence from the most reputable sources and follows new standards of practice for diagnosis and treatment. This includes information on the possible underlying causes, clinical features and effective treatments of Crohn’s disease and UC.
Eating Right for a Bad Gut
James Scala. Plume. March 2000.
This dietary plan has been proven to help inflammatory bowel disease go into remission. This program offers relief from the pain and embarrassment of living with these chronic illnesses while providing reassuring step-by-step guidance on:
How to Cook for Crohn’s and Colitis
Brenda Roscher. SourceBooks.
This book provides sound nutritional advice and outlines the unique dietary needs of people with IBD, showing how to incorporate this information to make healthy choices about which foods to eat. Includes more than 200 healthy, delicious recipes the whole family will love.
IBD Self-Management: The AGA Guide to Crohn’s Disease and Colitis
Sunanda V. Kane. AGA Press. 2010.
Vetted by the American Gastroenterological Association, this book offers expert advice on all aspects of living with IBD. Readers learn cutting-edge information about symptoms and symptom management; use of medications and surgery; the role of nutrition, supplements and specific foods and diets; IBD complications; how to increase fertility and have a healthy pregnancy; and other ways that IBD affects people’s lives.
Living With Crohn’s Disease
Dr. Joan Gomez. Sheldon Press.
This book looks at Crohn’s disease and UC, explaining what they are, who suffers from them, diagnosis, treatments (including side effects), day-to-day management and self-help.
Living Well with Inflammatory Bowel Disease: A Self-Management Handbook for Patients & Families with IBD
Wallace Crandall, MD; Kevin A. Hommel, PhD; and Maria E. Perez, DO (Eds). Nationwide Children’s Hospital and Cincinnati Children’s Hospital Medical Centre. 2011.
The result of collaboration between pediatric IBD experts at Nationwide Children’s Hospital (Columbus, OH) and Cincinnati Children’s Hospital Medical Center (Cincinnati, OH), this handbook combines comprehensive clinical knowledge with practical tips and suggestions from parents and kids who are living with IBD. It is also a companion and guide for those who are living with IBD and want to participate more actively in their own care.
The Culinary Couple’s Creative Colitis Cookbook
Denise & Ross Weale. November 2002.
This pocket-sized cookbook was created by a couple with UC in their family who are also culinary school graduates. It offers 100 easily prepared, low-fibre, non-dairy recipes for people with IBD, UC and Crohn’s disease.
Your Child with Inflammatory Bowel Disease: Family Guide for Caregiving
Maria Olivia-Henker, MD; David Ziring MD; and Athos Bousvaros (Eds). Johns Hopkins Press Health Book. June 2010.
In this book, an expert team of pediatric gastroenterologists explains the symptoms, diagnoses and treatments to help parents and children cope with the challenges of IBD. The book also provides parents with practical advice on how to tell their children about their IBD and discusses the challenges children may face at school and in their social lives, especially as they grow older. Additional information includes IBD medications, complementary treatments and further reading.
Confused by some of these terms?
Adapted from Stedman’s Medical Dictionary